Jamboree in Parishville for teen who recently had liver transplant
PARISHVILLE -- Organizers are planning a jamboree to raise money for 13-year-old Rachel Bartlett on Saturday, Oct. 13 from noon-6 p.m. at Fireman's Field on Rutman Road in Parishville.
Bartlett, a Potsdam resident, had liver transplant surgery this past summer and has experienced many health issues, said event planners.She was diagnosed with type 1 diabetes in 2006, anemia and low platelets in 2008. In 2010 she was diagnosed with CVID (common variable immune deficiency) and LRBA gene mutation deficiency. A port was placed so she could receive medications so her immune system wouldn’t fight her organs.
In May 2018 she was emergency flown to Children’s Hospital in Cincinnati, Ohio for acute liver failure, and received a transplant four days later. After recovering from the transplant, she received donor bone marrow from her sister Sarah. Rachel was then sent to a PIC unit because of respiratory failure and was put on a ventilator to support her breathing. She was hypertensive (with fluid retention) and later diagnosed with a TMA (Thrombotic Microangiopathy), and was put on a CRT (dialysis) machine for kidney failure.
Rachel had an older brother, Stevie Jr., that passed away in December 2015 with the same disease.
The Oct. 13 jamboree will feature live music from local bands donating their time. Meat and cheese platters, chips, dips, fruits, vegetables and other finger foods will be served and “the lounge” will be open to serve drinks.
Admission will be a $5 donation at the door.
Organizers are looking for the following donations for the jamboree: a gift certificate or a product, a food item, or a gas card or monetary donation.